Update 1-20
I told you before about Rowan's posturing, fever, etc? The Dr's think it might be something called thalamic storms. Which is apparently a misnomer because its not coming from the thalamus, but instead at the top of the spinal chord. Well, at least thats what I think they're telling me, and seeing as how I never took Anatomy, I'm having difficulty picturing whatever a thalamus is. It is the Brain Surgeons who are talking, and well, we all know what uber smart geek talk is like. Her EEG was pretty much a waste of time. It didn't show any seizures. Which would be awesome if that meant she wasn't having any. But because of the sedative she was on, a sedative which stops seizures, the EEG needs to be repeated. They are wanting to place a shunt in tomorrow. A shunt is basically a permanent drain running from her ventricles down to her stomach. The Dr who would be placing it does about 400 a year, so he knows what he's about. And it won't really negatively affect her life, tons of kids have them; its safe, its easy, and it will get those nasty drains out of her head and let her move around a bit (assuming, that is, that she'll start moving around).
We were told yesterday that it is pretty likely that as soon as Rowan is released from the hospital, she'll be going to a rehabilitation center. Not going home for a while.
If anyone wants to help, pray for our daughter. Put her on any prayer list you can think of.
~ Erik and Regan Wilkinson
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